More serious than we thought

Eddie has been in physical therapy for his torticollis. We have been seeing a doctor of phisyatry, basically a musculoskeletal doctor, and he scheduled Eddie for Botox injections. The botox was to cause the tight muscle in his neck to relax so we could really focus more on stretching it and strengthening the other side of his neck. This specialist wanted us to get some x-rays before we did the Botox just to make sure that Eddie's issues were not structural. The news came on Tuesday that Eddie has major anomalies of his spine and ribs. His head tilt and crooked body are caused from malformed bones in his body. I am in shock and am really scared for my son. We are going to see yet another specialist, a geneticist, on Monday to have him evaluated for a possible syndrome and determine what else we need to be looking at with him. I have not slept. This consumes my thoughts. I am so worried. Please keep Eddie in your prayers.